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I AM FEMALE MAGAZINE GUEST BLOGGER

My Cancer

Hello,

Been meaning to write about my illness for awhile now but somehow it just seems to trivial for me to write it to the world (coming from a girl who writes a fashion blog - huh, go figure rite?). Anyways, I think the battle is almost over; in a good way.

Previously the doctors were struggling to find a stem cell match for my stem cell transplant (wiki), my siblings were no match at all, so we had to find from Malaysian Blood Bank Donor registry or something like that - no match either. I think it’s only a matter of not enough self awareness among Malaysians, our database of blood/stem cell donors is small compared to Singapore. So they widen the search to Singapore, China & US. But no perfect match was found. At this point it was devastating as I really needed a transplant to prevent from the cancer cells relapsing.

But there was a silver lining on not finding a matched donor, turns out my leukemia is AML inversion 16 and it has a good prognosis or something. And turns out after my second chemotherapy session, no more cancer blasts were seen which means I have been in remission. At this point I have undergone four chemotherapy session, each rounding up to 3-4 weeks each session with 4-7 days of leave at home. In summary, the doctors said I am able to use my own stem cells for the transplant. So I don’t need to worry about my body rejecting any donor’s cell and I don’t need to worry about having to come up with money to buy oversea donor’s stem cells (would have cost around MYR100k!!).

I’m currently at the hospital right now for a collection, I had to undergo a cyclomobilisation session which was a one day chemotherapy infused through IV drips. Cyclomobilisation uses cyclophosphomide drug to induce the stem cells from my bone marrow to part and on day11(1st November 2010) they will use a machine to process my blood and get the stem cells and keep it until the day of my transplant.

When is my transplant? Honestly, cannot wait for all of this to be over so I can stay at home and not have to come to the hospital anymore but in all actualization 6 months after the transplant is the most crucial time. I am reborned with a baby-like health system so I have to be extra careful on what I eat, breathe or do. But, let’s take things one step at a time. The docs said my transplant could be on December. Another month in the hospital..

Till then.

Ami.

p/s: not everybody knows this but for those who have me on facebook probably does, I've started wearing hijab. Will upload some photos once proper photos are taken ;)



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29 comments:

  1. yeay! Ami update blog!!!!! :) Mudah-mudahan berkat rakan2 yang sayang Ami xlupa juga berkat suami awak tu berkejar kesana kemari melayan kerenah awak..Tuhan permudahkan semuanya..Mudah-muadahan Ami cepat sembuh ye!! Bole datang cuti2 Malaysia kat Penang lagi..

    p.s:yash xhabis2 ajak korg dtg Penang kan! ha ha ha

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  2. yash, kalau hang balik US bawak beg marc jacobs satu gerenti kami mai penang! yay time kasih nooooo!

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  3. ami,

    i've been following you since i dont know when. sejujurnya, saya doakan awak diberi kekuatan oleh Tuhan untuk lawan penyakit nie. semoga cepat sembuh and please keep updating your twitter, blog and facebook (i'm one of the awaiting list for approval hehe).

    mieza isa.

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  4. Salute u for being so strong.

    Tabik 1000000 juta kali.

    Moga segalanya dipermudahkan Allah SWT. Aminnn.

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  5. So proud of you!!! :) I'm sure wearing a hijab will definitely wont stop you from dressing up chicly as well. :) Great to hear that everything is progressing well. :)

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  6. semoga cepat sembuh! insyaAllah.

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  7. amiiii

    rinduuuu sangat sangat sangatttt..

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  8. All i can say Alhamdulillah.
    So glad to hear this.
    Just so you know,you have inspired me in so many ways.

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  9. ami, alhamdulillah, i'm very happy to know that you're recuperating and recovering well. syukur alhamdulillah. i doakan everything selamat and you'll go through a successful transplant. amin. you're my hero babe. you're one tough and strong willed woman. i admire you for that. take care dear. hugs.

    salam, zaza

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  10. yay! u dah start blogging. anyway i'm so happy to hear about ur condition babe. be strong, be healthy k! :)

    would love to lepak with you and yaya one fine day. ;)

    p.s: u looked lovely with hijab. :)

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  11. Ami, glad that you are doing well! i will pray for your recovery and can't wait to see your hijab friendly fashion post from now on.

    Insya Allah, everything will fall into its place.

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  12. OMAGOD ! YOU ARE BACK !
    GIMME HIGH FIVE FOR BEING STRONG SIS !
    ALHAMDULILLAH , YOU'RE IN HIJAB NOW .
    YEAY INSYALLAH , YOU MAY LAUNCH A HIJAB KINDA FASHION BLOG PULAK ;]

    STAY AWESOME SIS !
    BECAUSE YOU'RE THE AWESOME !

    *oh , i'm on CAPSLOCK , because i am so HAPPY & GLAD that you are back :)

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  13. finally you blog ..be strong semoga semuanya berjaya ...aminnnn ...
    get well soon ami ..i hope i will visit you someday!!!!! can't wait to see your picture on hijab ... semoga sembuhhhh!!! will doa for you always !!

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  14. Alhamdulillah...glad 2 hear u're gettg better..true wht they said..evrytg happened 4 a reason..now u'r wearing hijab n such,how beautiful the way Allah works isn't it?:) when He tested us,He just wants us to get closer to Him..nvr loose hope..Allah is always by ur side dear..tc =}

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  15. Ami. sounds like you're doing well, alhamdulillah. No calamities touch us unless to bring us closer to goodness.
    Good prognosis?! Good to hear! My dua' for you inshallah.
    Of course you are super cute in hijab! mcm muke zmn skolah mase katil kite sebelah2 heheheh

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  16. u are my inspiration :)
    i wrote about u... praying 4 ur health... take care

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  17. thank you everyone for all the support, not sure if I am as strong as u think I am but I'm holding on as I can hehe.

    One thing for sure, you guys make me feel stronger :)

    much love!

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  18. wishing u have a super fast recovery ami. be strong. pray hard. insyaAllah.

    take care :)

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  19. kak ami.
    be strong k.aina doakan akak cepat sembuh.

    :)

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  20. i pon doakan everything goes well and you'll go through a successful transplant babe.
    insya allah will come visit u again at the hospital.

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  21. ami, alhamdulillah
    hopefully everything goes fine..kita doakan yang terbaik

    -bila

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  22. you r definitely stronger than an iron lady. kudos.

    sure u'll be fine soon. amin.

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  23. u r definitely stronger than an iron lady. kudos.

    u sure will be fine soon. amin.

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  24. Ami, I'm so glad that it has all come together, and you're gonna do this transplant. You're a superwoman, both as a fashion blogger and now a survivor! I will think of you and this post whenever I'm complaining about the stupidest thing in the world!

    <3 @pluralfiction

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  25. Darling, you've always been somewhat my fashion icon, my prayers are with you, get well soon :)
    if you need an extra pair of ear, i'm here :)

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  26. teringat lagu cancer by my chemical romance.tho they r emopunk but that song mmg sedey gile k :(
    glad dat u've collected ur own stemcells.alhamdulillah.u hv all my prayers

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